My Chronic Diagnosis

Hey there!

I know I will spend a lot of time referring to my current conditions, and to some, it will make sense, and to others, it will all be brand new, so this page will be dedicated to providing reference to my current diagnosis. I will also be providing resources and support groups that I am a part of or recommend checking out for content.

Mast Cell Activation Syndrome

Mast cell activation syndrome (MCAS) causes a person to have repeated severe allergy symptoms affecting several body systems. In MCAS, mast cells mistakenly release too many chemical agents, resulting in symptoms in the skin, gastrointestinal tract, heart, respiratory, and neurologic systems. Mast cells are present throughout most of our bodies and secrete different chemicals during allergic reactions. Symptoms include episodes of abdominal pain, cramping, diarrhea, flushing, itching, wheezing, coughing, lightheadedness and rapid pulse and low blood pressure.  Symptoms can start at any age, but usually begin in adulthood. The cause of MCAS is unknown. Diagnosis is based on the symptoms, clinical exam, and specific laboratory testing. Other conditions may need to be excluded before MCAS can be diagnosed. Treatment includes several combinations of medications used for allergic reactions, such as antihistamines and mast cell stabilizers

https://rarediseases.info.nih.gov/diseases/12981/mast-cell-activation-syndrome

Mastoysis

Mastocytosis occurs when too many mast cells accumulate in the skin and/or internal organs such as the liver, spleen, bone marrow, and small intestines. Mast cells are a type of white blood cell in the immune system. Mast cells are responsible for protecting the body from infection and releasing chemicals to create inflammatory responses. The signs and symptoms of mastocytosis vary based on which parts of the body are affected. There are two main forms of mastocytosis. Cutaneous mastocytosis only affects the skin and is more common in children. Systemic mastocytosis affects more than one part of the body and is more common in adults.

Postural orthostatic tachycardia syndromE ( POTS)

POTS is a form of dysautonomia — a disorder of the autonomic nervous system. This branch of the nervous system regulates functions we don’t consciously control, such as heart rate, blood pressure, sweating and body temperature. The key characteristics of POTS are the specific symptoms and the exaggerated increase in heart rate when standing.

What does POTS stand for?

  • Postural: related to the position of your body
  • Orthostatic: related to standing upright
  • Tachycardia: increased heart rate
  • Syndrome: a group of symptoms

Types and Causes of POTS

The causes of POTS vary from person to person. Researchers don’t entirely understand the origins of this disorder. The classification of POTS is the subject of discussion, but most authorities recognize different characteristics in POTS, which occur in some patients more than others. Importantly, these characteristics are not mutually exclusive; person with POTS may experience more than of these at the same time:

I currently am diagnosed with two of the 4 types of POTS with a possibility of secondary as I continue testing.

Neuropathic POTS is a term used to describe POTS associated with damage to the small fiber nerves (small-fiber neuropathy). These nerves regulate the constriction of the blood vessels in the limbs and abdomen.

Hyperadrenergic POTS is a term used to describe POTS associated with elevated levels of the stress hormone norepinephrine.

Hypovolemic POTS is a term used to describe POTS associated with abnormally low levels of blood (hypovolemia).

Secondary POTS means that POTS is associated with another condition known to potentially cause autonomic neuropathy, such as diabetes, Lyme disease, or autoimmune disorders such as lupus or Sjögren’s syndrome.

Ehlers Danlos Syndromes (EDS 3)

Classical Ehlers-Danlos syndrome (Disease)disease is grouped under: Ehlers-Danlos syndromes Summary Summary Listen Classical Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder that is caused by defects in a protein called collagen, . Common symptoms include skin hyperextensibility, abnormal wound healing, and joint hypermobility.[1][2] More than 90% of people with classical EDS have mutations in COL5A1 or COL5A2, two genes which encode ..

In conclusion :

The documented list above is the bare bones of the other conditions that I deal with on a daily basis such as chronic pain, anxiety,medical ptsd, ptsd, asthma and the devils farts aka allergies.

Let’s hang out

%d bloggers like this: